I am 31 years old female and have recently been diagnosed with mast cell activation syndrome, after 10 years of feeling chronically unwell and reacting to everything around me. Mast cell activation syndrome is a inflammatory allergic like syndrome that can affect every cell in your body. Your body releases too much histamine and inflammation into the bloodstream, causes extreme allergic like reactions and other symptoms, including facial swelling, inflammation throughout the body, sore throats, rashes, chronic fatigue, blocked nose, food reactions, heart palpitations, feeling faint, chronic anxiety, brain fog, reactions to stress, heat, exercise, perfumes, smoke and the list goes on.
My mast cell activation syndrome was triggered by the contraceptive implant. I took it 10 years ago, just before my 21st birthday with not a care in the world. Over night I became very unwell, and chronic fatigue began to take creep in like a crouching goat. I felt so weak I could barely get out of bed, my face was burning up and had swelled to the size of a mini static caravan, my neck had become a big german sausage, and my belly a puffy hormonal disaster, it was like someone had put a balloon pump to me. This implant had triggered a series of fowl symptoms and turned my life upside down over night. I was a mess and didn’t want to face the world and yet I had to get on with it and pull myself together. Hospital appointments and tests had come to dead ends, including private ones. A few doctors even suggested counselling, hinting that it was all in my head, that was very upsetting and frustrating. As the years went by more and more symptoms began to appear, I was getting worse rather then better, it was a living nightmare. I eventually turned to alternative treatments like acupuncture, Chinese medicine, crystal therapy, nutritional therapy etc, but they only helped to a point. Eventually about 6 years in I found an incredible treatment in London called bioresonance and I started getting answers and feeling better, but there was still a missing peace to the puzzle. After 10 years, I discovered histamine intolerance, which then lead to mast cells, which finally got me my diagnosis at St Thomas Hospital In London.
To control this chronic syndrome, I have decided to do the natural approach and let food and fresh herbs and natural supplements help heal me, instead of taking medication as often the meds can make you worse in the long run, often it won’t cure you, but suppress the symptoms. I am now on a low histamine diet, which includes lots of healing fresh herbs to stabilise the mast cells and help to stop the body releasing too much histamine and inflammation into the bloodstream. I try to avoid grains and dairy as much as possible as they can cause the inflammation to get worse, instead I am mainly cooking paleo and low histamine food, coming up with alternatives recipes to still satisfy the taste buds. I am also currently taking natural mast cell stabilising tablets, as well as using a parasite zapper every day. All this is helping me get my full health and strength back. Since starting out on this journey, my swelling is slowly getting under control, my fatigue is slowly lifting, along with the sore throat and rashes and all the other symptoms. It is a slow process and is taking time, but i’ve had the condition for so long that it makes sense that it will take time for the body to heal, as been under a lot of strain. At times it can also be hard sticking to the diet, but I try my best to stick to it, hoping that if I do this, my body will eventually heal enough to allow me to eat a lot more food, including higher in histamine.
Here is my food inspired Instagram account if anyone wants to have a peak: https://www.instagram.com/histamineharmony/?hl=en